1

Shorter leg or not?

Isa had her appointment with the orthopedic last Thursday, last time we met him was a year ago, at that time he said that the difference between Isa’s legs was about 1cm and that we should wait a year until we met again and see how the difference was looking by then. Well, we met him last Thursday and after checking Isa he came to the conclusion that the difference was just a few millimeters and as he said, everybody has a few millimeters difference in between their legs.  And we thought … how can that be so? When she walks and when you look at her legs it feels like the difference is more than just a few millimeters, you can see how one leg is just shorter, not just a few millimeters. The answer he had, was that as the left side of her body is weaker she doesn’t have the strength to stretch the leg completely.

Okay, hearing that her leg is not shorter makes me feel better, now, we just need to focus on her training on a different way.

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5

Still alive

I can’t believe how fast time is going and I feel like I can’t keep up with the blog, that’s definitely not what I want, but the days go by and I can’t seem to find the time to write, or when I have the time I have no inspiration to write. I won´t even try to catch up with everything that has happened during these months, I will just go ahead and try to write what is going on right now.

Isa is big, and when I say that she is big, I mean that she has grown up so much! It happened rightt in front of my eyes and I didn’t notice but all of a sudden she is so tall and her face looks different, it feels like the baby escaped right through my fingers while I was pregnant with Ella, even now, just after the summer her teachers at day care said that she grew up so much during the summer. She is a little girl now and with this comes what it feels like a whole new person. She is very stubborn, which I really like and it feels like that stubbornness can come very handy with her special needs, she knows what she wants and that’s it.

She has developed so much in many different ways, but I think the biggest change that we have seen is mentally, is like something has shifted and now she understands what you say, she understands what you are asking and she gives you answers, with words, sign language or pointing, but she now understands and that makes the communication so much easier. She is also stronger in her body, can’t yet walk by herself, but she is getting there, slowly but getting there, she can do daily stuff without help now, like eating with a spoon or fork, grab a glass of water with both hands and drink by herself. That alone makes lunch time so much more fun for her, she loves being independent and we love that too. She decides now what she wants to wear or not to wear. She loves her “big sister” role and tries to take care of Ella as much as possible, it’s becoming so much fun to see them interact. Ella is now 5 months and she is such a strong baby, it’s been amazing for Nicklas and I to see this baby doing all this things that Isa never did or that it took so much longer to do. Ella is almost crawling! I mean, crawling is something that Isa can’t do and to see this tiny person doing it amazes us so much, we are enjoying so much every milestone she reaches and Isa loves her and wants to do everything like Ella.

Isa has been having more ABM sessions, she had 4 just last week and now is going to have 2 session every two weeks. So far this year she has taken a total of 20 sessions and we can see changes on her every time she has one. She had X-rays on her hips a week ago and she has an appointment with the orthopedic this Thursday, we want to check the legs again, she has been using the AFO’s but I haven’t seen much change in her walking with them. She had an EEG sometime in May and we continue with the same medication. She has an appointment with the eye doctor next Monday to check if the squinting has improved.

Overall she has a lot going on like usual, but we are happy with the way everything is moving forward, she loves day care, she loves kids and socializing even when she can’t communicate verbally, words are coming out more and more and her sign language is getting better, they also started with sign language at day care and now every kid has its own sign to identify them.

We had a nice summer and now I hope I can start blogging more often again!

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5

Follow up

It feels like forever since a wrote a post, but let’s just say that life has been a bit “busy” and it is just now that I find the time to sit and write.

There has been a lot going on here, with Isa, Ella, home, work etc… But everything is going good. I never posted anything about Isa’s AFO’s, she got them right after Ella was born, so that makes it around 3 months ago, I remember it was just a week or so after Ella came and my hormones were all over the place, so the first time we tried them on and saw her walking around on them, I started crying, I couldn’t hold myself, but once again, my hormones were playing a hard time on me, so, that feeling is long gone. They haven’t been perfect, after she got them, they had been fixed a few times, a little bit of trimming here and there, but it seems like they are good now.

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It also feels like she can communicate a bit more now, she is still not putting words together but a word comes out here and there, she does understand both Spanish and Swedish at home, since I just speak Spanish to her and Nicklas Swedish. She just surprises us with a random word everyday and then she doesn’t use it again. She has some favorite word in sign language that she likes to use over and over and she’s starting to say her name in sign language too.

We haven’t been really happy with her new eye glasses, she is squinting with them, something that she didn’t do with her last pair, she has a check up soon and let’s see how it goes, it was quite a nightmare last time when she got her eyes checked, I almost cried just looking at the ordeal she was going through but we will see how it goes this time.

She got 4 ABM sessions 2 weeks ago and will get 4 more in 2 weeks… I will write a post about this soon.

She got an EEG last month, we get the results next Friday, we are hoping to lower the dose on her medication, but we will see.

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She has been a very good sister to Ella, she just loves her and wants to be all over her. She’s quite rough though, so we have to always have an eye on her when she with Ella. She just loves to hug her and kiss her and likes to pull Ella’s hair and pull her socks off 🙂

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Ella has been such a joy, she’s just so calm and smiles all the time, she loves to get attention and just starts talking and smiling non stop. She is also very strong, she’s turning 3 months on Saturday and can almost roll on to her belly, it’s gonna be so much fun to see her develop and enjoy all the stages and milestones that Isa couldn’t reach at the same age.

Isa had her summer festival at day care yesterday, it was so much fun, she loves attention so you could see how much she was enjoying to sing in front of all the parents. We have been really lucky finding this day care for her, all the teachers and principal have been such a great help to us and Isa, she absolutely loves to go there everyday and that just feels amazing, they care so much about her and about learning more and more to be able to help her in everything she needs.

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7

Happy birthday Isa!

Isa is 2 years old today! Wow! I mean, time has gone by so fast, I’m sitting here looking at a picture from 1 year ago and she has changed so much in every sense. I have been meaning to write a post for 3 weeks now, but since Ella came to our lives, I literally have had no time, I’m writing now with Ella hooked to my breast and Isa just fell asleep, she was exhausted after the busy day she had.

Nicklas father came for a visit with his wife for the weekend and his brother came today too. She got many gifts and was wearing a dress that my sister sent from the States.

You need a big gap of time to see the progresses that she makes, looking back 1 year ago and today, I can see how much she has improved in many different things and at the same time I can see how the gap in between Isa and the other kids her age is also bigger, but that doesn’t make me worry or cry or makes me sad like it used to make me, the feeling that I have has changed, I know that she has her own timing for every single thing and that she’s getting there. I also know, as I have always known that she is amazing, she uses and has used just half of her brain from day one. I’m more than proud of her and I think that the guilty feeling that I had been dragging since I found out about it, has finally started to fade away, I know it’s not my fault, but I always had “that” feeling that I had done something wrong… or something like that. I still wish I could take a look into the future and see how she will be doing in 5, 10, 15 years, I still wish I had all the answers when it comes to her therapies, treatments, AFO’s etc… but I don’t have the answers and I just have to wait and see and experiment.

I have so many updates that I have to write about, her AFO’s, eyeglasses, sister Ella, sign language, day care, etc… I just really need to find the time to write.

But here she is, on her second birthday and she might not be running around like all the other kids her age, but oh!! she has the most loving parents she could ask for and the most loving family too. I can’t believe she’s 2 and my family hasn’t been able to meet her yet, it breaks my heart and theirs, but this is gonna be the year when we will finally gonna travel to Mexico or the States for the big visit.

– I love you Isa, we love you!- Happy birthday to you!

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13

Meet Ella!

Ella is here, she came to us last Friday night, by surprise at 37weeks 6 days. Isa was born at 40 weeks 2 days, so I always assumed that this baby would come at 40 weeks  too, but I was wrong. It all happened so fast, at 19:00 I started with contractions, here and there, I cooked dinner and didn’t say anything, I really thought they were gonna go away, we finished dinner and Nicklas put Isa to bed, then we just laid down in the sofa to watch TV and then I knew it, they were real. I had a stronger one and said to Nicklas “this is the thing… the last hour, I have been having contractions, I didn’t wanna say anything because I thought they were gonna go away, but now I know, they are real”. I knew he was gonna freak out because we had a really busy weekend at the studio, fully booked classes and he was teaching 2 classes the next morning etc.. So he started to google “how to stop early contractions” or something like that, he came up with the idea to drink some wine, he brought a glass to me and after 2 sips I knew this was not gonna help as the contractions were getting even stronger so I texted Isa’s babysitter to make sure she was available and to get ready. We called her in at 21:45, she arrived and we drove to the hospital, at this point the contractions were coming every 2-3 minutes and they were so strong. We arrived at the hospital at 22:10 and they have the most ridiculous security system or whatever, that you have to go through 3 doors and every time you reach one, you have to ring the bell and wait for someone to show up. I was going crazy waiting for them to open every single door, at the last one I just threw my self on the floor having a contraction waiting for someone to open the door while Nicklas couldn’t believe in how much pain I was and how fast things were going. A midwife finally opened the door and run to grab a wheelchair to take me to a room. Now, this is how I remember things happened: I climbed up the bed, I took Nicklas hand a asked him not to leave me alone, they took my clothes off, the midwife started touching me and I remember Nicklas asking how dilated I was and the midwife said, she’s ready, the head is here, the baby is gonna be here at any moment. After hearing that I went for it with all my strength and after 3 more pushes she was born, at 22:27.

They put her on my chest and there she was, this tiny little person screaming, full of life. And just like that, my heart expanded, my love multiplied and I had all this love for her, I couldn’t believe it, everything happened so fast I forgot about to ask for the sex, but Nicklas did and we turned her around to see our beautiful daughter and there we were, we had just became 4. She has a head full of brown hair, she is tiny, we knew that, they had been saying that during the ultrasounds, that the baby was small on a normal scale, just like Isa was born small too.

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I couldn’t have asked for a better delivery it was fantastic, just the way I wanted it, fast and without drugs it was quite different from Isa’s birth. We stayed the night at the hospital and next day Nicklas came with Isa to meet Ella. I have to say that I had been very nervous about that moment, I was so afraid that Isa was gonna be so jealous or shocked or something to see someone else on our arms, but her reaction has been fantastic and it just gets better and better by the day, she LOVES to be around her, she just wants to touch her and see her first thing in the morning, if Ella cries, Isa starts imitating her and fake cries along with Ella. It has been such a relief to see that.

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She’s 5 days old today and I love her more by the day. It just feels a little bit easier the second time around, in some ways you feel much more comfortable and enjoy every moment more. It’s been a lot going on the last days and we are trying to get used to having 2 children at home. But we are 4 now and we love it.

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5

Getting AFO’s

Isa finally had an appointment with the orthopedist last Wednesday. We had been talking about it for a few months, that we felt like she couldn’t find the right balance to stand by herself due to her shorter left leg. Her orthopedist said that we would meet again after a year, but we finally got an appointment with another orthopedist sooner. Last time it was said that the difference between the legs was about 1.5cm, so they started making her stand up with a 1.5cm sole under her left foot and it turned out to be to high, they tried a 1cm sole and seemed good for Isa. It’s good to see that the difference is not increasing but becoming even less. The orthopedist and one of Isa’s physiotherapists were looking at her while she was walking around barefoot. They could see how she’s always standing with all her body weight on the left leg and bending a bit the right one and when she walks she hyperextends her left knee putting too much pressure on it, which can lead to an injured knee.

They decided that the best thing would be to have a 1cm sole under her left foot and that using AFO’s (orthotics or braces) would be the best to correct the hyperextended knee, so she’s getting a left bace with a higher sole and then the orthopedist said that it would be good to have another one on the right leg also to give her the same stability and help her to start walking by herself as soon as possible.

So we stayed there and did casts of Isa’s feet (not her favorite moment) and then got to choose the pattern to have on the AFO’s which I chose as she was not very into choosing one, I went with purple hearts. If you have no idea what I’m talking about and what or how AFO’s look like… they look like this:

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We have an appointment on the 27th of February to try them on. I must confess that finding out that she needed more orthopedics was not my favorite moment, it made me sad for few seconds and then I just had to look at the positive side of this and I don’t want her to end up with a knee injury and we want her to be able to walk as soon as possible, she’s dying to be able to move by herself, she understands now that she can’t while all the other kids around her are just running around. So to be honest I just can’t wait now to get them and see how she feels on them and help her to walk.

She’s also getting new eye glasses, with her new prescription and a bit bigger since the ones she has now are starting to feel small on her.

She has been quite temperamental lately and just wants to be with me and on me all the time… due to the pregnancy maybe??? .. I don’t know, but I hope she goes back to sweet and normal soon!

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